PPMD's advocacy strategy is multi-agency (FDA, NIH, CDC) and multi-layered. Yes, we focus on legislation like the MD-CARE Act which has transformed the landscape in Duchenne. But we also work to shape regulatory policies that reflect the needs of our community, meeting with the FDA and EMA about how the patient voice can best be utilized to speed access to potential therapies in Duchenne.
On February 11th , Pat Furlong, Ryan Fischer and Dave Zook (FaegreBD) provided an overview of PPMD's overarching advocacy strategy, laying out our goals for 2014 and discussing how you can get involved at our Advocacy Conference in Washington, DC and/or advocate from your home.
How You Can Help PPMD's Advocacy Agenda (February 2014) muscular endurance | |
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| Non-profits & Activism | Upload TimePublished on 12 Feb 2014 |
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